A UK parliamentary committee reviewing Kim Leadbeater’s Terminally Ill Adults (End of Life) Bill voted 13-8 on Monday to reject an amendment that would have protected people with Down syndrome from being encouraged toward assisted suicide by doctors. Disability rights advocates are expressing concern, warning that the decision leaves vulnerable individuals unprotected under the proposed law.
The amendment, which had the backing of 50 advocacy organizations, including Down Syndrome UK and Down’s Syndrome Scotland, sought to ensure that people with Down syndrome were not coerced into ending their lives. Under the bill’s current form, doctors would be permitted to use their “professional judgment” to raise the topic of assisted suicide, including proactively suggesting the option to patients — even if a patient had not shown any indication they were considering it. This provision has raised fears that vulnerable individuals could be subtly encouraged toward suicide.
The committee has consistently rejected proposed safeguards. In addition to the Down syndrome amendment, the committee also voted against protections for people with autism, learning disabilities, and minors aged 16 and 17.
MP Danny Kruger, a principal opponent of the bill, noted that people with disabilities are particularly vulnerable under assisted suicide laws, emphasizing that “there is already a fundamental assumption that the lives of people with Down syndrome ‘are worth less than others.’”
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The Leadbeater Bill seeks to legalize assisted suicide for terminally ill adults with six months or less to live, provided certain criteria are met, including mental competency and approval from multiple doctors. However, as Live Action News previously reported, safeguards in similar laws in other countries have been eroded over time, expanding eligibility to those with mental illnesses or non-terminal conditions.
The bill passed its first vote in Parliament in December, with 330 MPs in favor and 274 against, following five hours of debate. While supporters hailed the vote as a “historic step,” the bill now faces intense scrutiny as more than 200 amendments are reviewed.
MP Kit Malthouse, a supporter of the bill, raised concerns after the committee’s rejection of the amendments. He asked if “measures” could be taken against those who “misrepresent” the committee’s decision on social media. He was informed that public statements about the committee’s decisions were outside its jurisdiction. MP Kruger responded, stating, “It is not the job of this committee to police social media.”
Lynn Murray, spokeswoman for Don’t Screen Us Out, called MP Malthouse’s statements “disturbing” and said he “appeared to be threatening organizations representing people with Down Syndrome simply for criticizing the committee’s decision. We will not be silenced in our desire to protect the vulnerable.”
The committee’s actions have prompted further concerns about the potential for coercion in discussions around assisted suicide. Dr. Rachel Clarke, a palliative care doctor, recently warned that even asking a vulnerable patient about assisted suicide could create unintended pressure.
She explained, “If, for instance, you say to a vulnerable patient who has just been told they have a diagnosis of terminal cancer, ‘Have you thought about assisted dying?’, I would suggest that stating it broadly like that is a form of pressure and that you are potentially unintentionally coercing that patient.”
Catherine Robinson, a spokesperson for Right to Life UK, raised concerns about the pressure that may be placed on terminally ill patients in the context of the NHS system, saying, “Given the state of the NHS, the pressure on beds, and the cost of treating terminally ill people, it is not difficult to imagine conversations in which a doctor raises the prospect of assisted suicide based on their ‘professional judgment.’”
She continued, “Many patients, used to accepting a doctor’s recommendations, may feel they are being encouraged to die even if assisted suicide is only presented as one of a number of options.”
The bill will now undergo further scrutiny, with MPs reviewing over 200 amendments before it moves to a final vote in both Houses of Parliament. Right to Life UK has indicated that the committee’s rejection of key safeguards may lead some MPs to reconsider their support for the bill.
